“You’re a warrior Baby.” My eyes filled with tears once again as my husband said this to me. I sure didn’t feel like a warrior; I felt utterly defeated, with a heavy mantle of guilt laid squarely across my shoulders.”If I am a warrior, I sure am a wimpy one” I replied.
It had been a hard day and I was an emotional mess.
The day started with waking up to a full-on fibromyalgia flare and an almost overwhelming feeling of grief for my dear friend and her children, who were burying their husband/father that day. After the funeral our Sunday School class was providing lunch for the family. Normally I would have helped set up, serve, and clean up, but with my pain levels where they were, there was no way I could help do any of that. I had to leave right after the service. As if that weren’t enough, that evening, my husband had to facilitate the class we normally facilitate together because I wasn’t able to go. The guilt of having failed to do two things in one day was almost unbearable. Mentally, I knew I shouldn’t feel guilty because I can’t help being ill, but emotionally, I just kept beating myself up. I kept wondering if I should have just “sucked it up” and done it anyway. I wondered if I was just being a wimp. It’s hard to be objective about things when you’re so emotionally invested.
The next day I was able to look at things a little more objectively and as my husband and I talked about my feelings of guilt, he said something to me that kind of shocked me. He said, “I’m not sure you believe you’re sick. If you had the flu or a broken arm or something, you wouldn’t be feeling so guilty about not being able to do things. What makes this different for you?” He made a good point, and although I assured him that I do know I’m sick, sometimes I wonder if I’m just being wimpy about my pain and that I don’t hurt as much as I think I do. In my mind I know that’s not true, but sometimes I have trouble getting the truth through to my heart.
The truth is you can’t take responsibility for something you can’t control. You just have to let go of those feelings of guilt and concentrate on things that serve you better. These are some things that might help:
- Acknowledge your feelings. Trying to stuff them down or hide them only allows them to grow in your mind and make things seem worse than they really are.
- Realize that you’re not choosing not do do something; your body is choosing it for you.
- Find other things that you can do. Maybe you can’t serve lunch, but you probably can send a card, or make a phone call, etc.
- Be kind to yourself. Give yourself some grace – if you wouldn’t say it to your best friend, don’t say it to yourself. No negative self-talk!
Feeling guilty about things you can’t control only keeps you from moving forward and doing the things you are able to do, so if you struggle with this also, I encourage you to let it go!
Blessings,
~Terri
My condolences. What a heartbreaking experience.
This post is so incredibly relatable. The guilt is the silent monster in the room. Learning to pace and have self compassion have been incredibly difficult for me too, but my body is giving me little choice. Very unfair, all of it. It sounds like you have a gem of a hubby though, that’s a silver lining for sure.🌼
Thank you so much. Learning to live with chronic illness is definitely a learning experience, isn’t it? I do have a wonderful hubby and feel very blessed!
Reblogged this on Dream Big, Dream Often.
Thank you Danny! You’re the best!
🙂
I think all of us with ME/CFS and/or fibro can relate.
Thank you Ellie. I agree – it seems we all feel some level of guilt when we can’t do everything we feel we should.
This is so hard. We are so programmed to be superwomen that admitting our limitations takes bravery. Letting go of the guilt is an ongoing lesson for sure.
That’s a great point about us being programmed to be superwomen. Letting go of the guilt is hard and like you said it’s an ongoing process, but it’s so necessary to being able to live well in spite of our illnesses.
Thank you for this! I love what your husband said, “I’m not sure you believe you’re sick.”
This is so me! I suffer with Rheumatoid Arthritis, fibromyalgia, neuropathy and a host of other issues. At times, I just pretend that I don’t have any issues (and sometimes don’t think they’re that bad) and push through but end up paying for it in a major way, which usually means bedridden for about 3 days.
I know that guilt feeling but try to remember that it’s ok to say no and take care of myself first. Sometime difficult but doable.
Hope you are feeling better!
Thanks so much Terri! You’re absolutely right – it IS okay to say no and take care of ourselves. I just have trouble remembering that sometimes.😊
Such a reminder that guilt is so useless.
Thank you Julia!
I can’t add anything to the comments above! Just that I agree that we must be good to ourselves!
Thank you Jo Ann. I know I tend to be way too hard on myself and that is definitely not helpful. Being good to ourselves isn’t selfish it’s absolutely necessary.
Amen!
I truly commend you for sharing this. And you’re so right about not taking responsibility for something we can’t control. Such sage advice.
Thank you so much Mark. Sometimes I feel I might share a little too much but I hope that by being upfront with some of the things I struggle with I can help others realize they’re not alone. Thank you for your kind words..
“I wondered if I was just being a wimp. It’s hard to be objective about things when you’re so emotionally invested.” So very true. Fantastic post, and even though it’s harder said than done, it’s so important to be kinder to ourselves, to move away from the guilt and look at the things we can control and manage. Great post, Terri! x
Thank you so much Caz! I love what you said about being kind to ourselves, moving away from the guilt and looking at the things we can control and manage. I think that’s a major key to being able to live well regardless of our circumstances.
Terri, a great post that really describes the psychological battle that travels alongside the physical struggles of ME/CFS/FIBRO. A turning point came for me following a four day Adlerian Summer School Workshop in Ireland. I was trying to ignore my illness for years and suffering the consequences but that workshop helped, I learned to listed to my body and realise that I am good enough as I am. The acceptance of self that came with that was amazing and has made life easier for me and everyone around me. Thanks for sharing your experience and your tips!
Thanks so much Marie! I think the psychological battle has been much harder for me than the physical one. I’m learning acceptance, but it’s definitely a process. I love what you said about realizing that you’re good enough as you are. May we all get to that point and let go of the guilt!
You are welcome Terri! It’s a good feeling to know you love my comment about being ‘good enough’, It certainly made sense to me at the time and quiets that troublesom inner critic! I think sharing experiences has powerful learning potential. I know I am learning so much from fellow bloggers. Again thanks for a very honest and thought provoking post!
This I feel is so true if you had a visual illness you think everyone will understand and accept but because the pain lies within you feel guilty, drop that guilt this minute, WE KNOW ITS REAL and that’s hard enough to deal with without guilt sat on top.
Ask yourself Terri, would you judge another so harshly …. no ….. so why hurt yourself. Keep going, keep resting, keep loving, keep being you 🌹
Thank you so much Elaine. You’re absolutely right that I would never judge anyone else so harshly. I’m learning to accept my limitations, but it’s definitely a process for me. The good news is that I am learning. I hope by sharing I can help others see how useless carrying guilt around is and maybe shorten their learning curve a little.😊
I think you are helping so many others, you help me all the time 😉
Thank you. You’re such a blessing to me!
We all all a blessing to each other. 🌹
I love this post, I HAVE to share. And… you ARE a Warrior! I think guilt is a BIG one for us, I’ve had a post I’ve been trying to put together on this very topic… I can’t get it right and that is becuae everyday I look on the mirrow and think, Well, you don’t look sick. I am my onw worst enemy… maybe there is my beginning. This is beautifully written and will forever be saved on Stone in the Road, a collection of stories. ~Kim
Thank you so much Kim! You know, I can definitely relate to what you said about having such a hard time getting your post on this subject right. This is the one I’ve struggled with writing more than any other so far….Like you, I’m my own worst enemy. Let’s decide today that we’re going to be our own best friends. Hugs to you! Thanks for the reblog!
Awe. Hugs right back and yes, I’d like to be my own friend. If you promise, and I will promise too!~Kim
I promise!
me too!
I needed to read this today.
Thank you so much. I love it when we find what we need when we need it. I’m glad you found it helpful. Blessings to you!
Hi Terri,
Just wanted to let you know that this post was a readers’ fav on my Twitter for the week! I’ve listed it here 🙂
https://www.achronicvoice.com/2017/12/02/issue-86-top-health-tweets/
Keep up the fab writing!
Thank you so much Sheryl! I really appreciate it. I am humbled to be included with these great bloggers.
What are you talking about…you are awesome yourself! 😀
Awww….you’re too sweet! I feel very blessed to be part of a network that includes wonderful bloggers like you. Hope you have a great weekend!